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You should be ashamed to be sitting here!"
Vipul Goyal did not utter a word. The Indian Oil
officials were indignant that he had applied for
a gas agency in the handicapped category. And it
looked like the interview had ended even before
it had begun, for the officials were not about to
hand over Solan's first gas agency to an imposter.
But as they saw Vipul being helped out of his chair,
their jaws dropped. So he wasn't pretending after
all. Squirming with embarrassment andnow scarcely
able to meet Vipul's eyes, the officials listened
mutely to the story of the Goyals of Solan and their
triumph over tremendous odds.
Three of the six children of Kusum, 63, and Nagarmal
Goyal, 65, are afflicted with limb girdle muscular
dystrophy (MD) - a disease that starts by weakening
the muscles. Over time, MD renders movement progressively
difficult, till it becomes virtually impossible.
It struck the three Goyal siblings Vipul, Atul and
Sanjana - now 40, 38 and 33, respectively - in their
early teens. Mercifully, the other three, Devna,
Archana, and Anurag - now 35, 34 and 28, respectively
- are able-bodied. A genetically transmitted disorder,
muscular dystrophy has no known cure.
| The
disease meant a struggle over even mundane chores,
and a daily fight to keep the home fires burning. |
It takes courage and an iron will
to combat the disease. The Goyals had it. And, from
a family struggling to make ends meet out of the
modest earnings of a small hardware shop, the Goyals
have swung their fortunes around. Today, they count
among the elite of this hill station in Himachal
Pradesh. The family has a posh double-storied house,
two cars and three flourishing businesses.
The disease strikes three.
It wasn't always so for the Goyal family. "I
remember running. Running like mad ahead of all the
boys. Running down the hill after school," recalls
Atul. Vipul and Atul would rush through homework to
join the rowdy bunch of children at play. They were
all between eight and 10. Cricket, badminton, pitthoo,
gullidanda, hopscotch were the favourites. And aiming
stones at windowpanes. Play over, the brothers would
rush to the family shop to help their father.
Unnoticed, the disease crept into the happy household.
Vipul fell off the roof and was in bed for six months.
when he recovered, the weakness in his legs and his
strange gait were seen as the after-effects of the
fall. He was 15. At about the same time, Atul recovering
from typhoid felt the same weakness in his legs. "I
was late for school
wanted to rush up the stairs
but my legs just would not move," remembers Atul.
And suddenly, Sanjana, then eight, began to behave
like her brothers. She would hold her knees to pull
herself up the stairs, or roll to one side and clutch
at objects to get off the floor. Family and friends
said the child was imitating her brothers, but Sanjana
knew something was wrong. They would try to push the
thought away but all of them knew something was really
wrong.
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